International web-based SUPPORT/ADVOCACY GROUP for patients diagnosed with Myotonic Dystrophy type 2 (DM2) or PROMM. Access the largest online DM2 patient resource base to become better informed about DM2. Share support & a wealth of information including full text research, best updated links, etc. Information available on request. Patient members currently reside in the U.S., Canada, Europe & Australia.

DM2 is an underdiagnosed form of Muscular Dystrophy, suspected to have a similar prevelance to DM1. It is an autosomal dominant inherited multisystemic disorder caused by a defective gene on chromosome 3q21. The clinical features are heterogeneous & may include SOME OR MANY of the following: progressive muscle weakness & pain, stiffness, myotonia, fatigue, daytime sleepiness, cataracts, cardiac abnormalities, endocrine abnormalities i.e.insulin resistance & mild cognitive disorder. This disease is clinically similar to Myotonic Dystrophy (DM1 or Steiner's), but there are critical differences between DM1 & DM2.

Our advocacy is intended to raise the profile of the myotonic dystrophies, increase availability of accurate updated information, support research efforts & encourage members to become more informed about issues impacting their health. This forum includes current full text research, links to other sites & a growing list of resources on DM2, also known as PROMM, MMD2, Proximal Myotonic Myopathy, Proximal myotonic dystrophy, Dystrophia Myotonica 2, Myotonic Dystrophy 2, Myotonic Muscular Dystrophy type 2 & Ricker Syndrome. A nominal level of participation is required by all members.

Participants of this forum must note that we are not medical professionals. Ideas and discussion in this forum are intended to be educational in nature. For diagnosis and management of DM2, seek a neurologist who specializes in adult neuromuscular diseases.